Prostate CA: Sy grows a 'tache and KF grows half a beard

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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Rambo » Sun 05.11.2017, 19:47

Never say never Dave.

If Mohammed can't get to the mountain then the mountain will come to Mohammed

I can't promise Sgurr Alasdair at sunset but I can promise you some Talisker. If you or Spud pm me your address I will get it sorted. I appreciate that time might be linited but i will personally drive it down to Lincolnshire if it helps ?

Have you ever tried Talisker storm ?

Slainte :cheers:
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Dave Eds » Mon 06.11.2017, 10:56

You have a PM Mark :wink:
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby DaveT » Mon 06.11.2017, 12:51

Rambo wrote:Never say never Dave.

If Mohammed can't get to the mountain then the mountain will come to Mohammed

I can't promise Sgurr Alasdair at sunset but I can promise you some Talisker. If you or Spud pm me your address I will get it sorted. I appreciate that time might be linited but i will personally drive it down to Lincolnshire if it helps ?

Have you ever tried Talisker storm ?

Slainte :cheers:


Hi Mark you also have a pm from me.

Not tried Talisker Storm- hadnt heard of it.

Last time I went to Talisker I was sat at a table with about 6 other peeps who didnt like whiskey!!! Had to walk back to Sligahan and pick my car up the next day. Was worth it.

D
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby muley » Mon 06.11.2017, 20:14

So sorry to hear about your situation.

Hope you can be as comfortable as possible.

Kind regards

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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby DaveT » Wed 22.11.2017, 15:55

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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Dave Eds » Wed 22.11.2017, 16:14

Keep reading Davey. There are always twist and turns right up to the end of any book.

We're with you both all the way mate :wink:
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby DaveT » Thu 23.11.2017, 19:37

Dave Eds wrote:Keep reading Davey. There are always twist and turns right up to the end of any book.

We're with you both all the way mate :wink:


Good job I turned the page then.....
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Bolsom » Thu 18.01.2018, 12:45

Hi all,
For what its worth I have taken a selenium tablet 200mg once a day for the last dozen or more years. This
was after reading in the New Scientist that it had proven been to reduce the chances of prostate cancer. The professor
in charge said he would now take them for life. I had an op. for an enlarged prostate but that was no problem.
I also had cancer, but that was tongue and throat and ten years ago. I am elderly.

Colin
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby DaveT » Sun 11.03.2018, 13:43

Bump!!

Recent news has made me put pen to paper again. They think testing does more harm than good. If your Doctors know what they are doing there should be no harm done.

Despite what recent research says- a PSA test ever year if your over 50 is essential if you are to avoid getting advanced prostate cancer. If a close relo had it then age 40 plus
Once you get a positive test then have it checked straight away- do not wait to see what the next reading is the following year -it may be too late
It is the rate of increase in that which is important/critical in monitoring your status/aggressiveness of the cancer.

Early symptoms are NONE.

By the time you get symptoms its too late!!!

A DRE doesnt always pick it up- mine was normal.

If its positive or going up, then MR or CT scan before biopsy. Biopsy only gives the grade of the tumour it doesnt tell you how much is there or whether it has spread.
If the prostate is removed it cannot spread. Once it has spread you face a journey like mine- dont let that happen to you.

If you are diagnosed get referred to a specialist cancer unit not an ordinary hospital and see a Consultant who deals with your particular cancer not a "jack of all trades"

The USA stopped screening and their rates of advanced stage diagnosis have gone through the roof- NISM

By the grace of my God I have had 8 years since diagnosis when stats show I should have had 3. Those of you who know me know that hasnt been the easiest of journeys but nevertheless I have plodded on regardless-

Please please please don't let this happen to you and your family

Get tested every year

DaveT
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Brit-Car-Nut » Wed 04.04.2018, 17:57

Unfortunately, it seems I have joined this (not so) small club. Less than frequent PSAs (all low with no warnings) until a DRE (look it up) suddenly finds a lump. Biopsy has 10 of 12 samples at Gleason 8, so just read the riot act and lots of things to get done. No insurance is a bitch (no way I can afford $1,560.00 a month with $20,000 deductible. My Leukemia team has arranged for the prostate group to do the required CAT scans and PET scan and then a conference to see if I fit in any study that they are hosting.

If Dave felt back and pelvis pain anywhere near where I was last week, I am truely sorry for his ongoing fight. I don't think anyone really can appreciate what is happening until they get to share the ride.

I hope Dave continues beating the system and I now join Dave with his PSA push but suggest that a PSA- FREE (it is not much more but provides better data) should be done as frequently as you can arrange but no more than a year between tests. Get a DRE EVERY YEAR or more often as well.

My doctor thought he was helping me save some dosh by not even suggesting it. I had to push him the last two times I had it done and regret not making it mandatory.

WAKE UP EVERYONE! Nobody is immune and everyone is suspect.

I thought I was all done in when I was hit with the leukemia diagnosis right after getting my M100, but that appears to have been a minor blip compared to the prognosis I got yesterday from my new doctor.
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Rusty Wishbone » Wed 04.04.2018, 21:56

I'm sorry to hear your news BCN. I wish you all the best with the treatment. You are in our thoughts.
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Steve A » Wed 04.04.2018, 22:09

Sorry to hear your news, it should spur us all to get checked
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Jamie N » Thu 05.04.2018, 09:03

Sincerest best wishes for the future BCN, Keep your chin up and stay as busy as you possibly can.

And for others reading this... take on board what is being said, get checked regularly, putting it off
until next year is the worst thing anyone can do, that is one thing above all others that will
result in the poorest prognosis.

Cancer does not discriminate... it will come after every single one of us given the chance.
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby DaveT » Thu 05.04.2018, 10:59

Sorry to hear this news BCN

I have said I want nobody else to get this damn disease.

Please please get tested.

For those in the UK. If your GP wont test you. Take a trip to Poland where you can get a PSA done on the High Streets for a few quid.

PSA, DRE and scans not always reliable. Nor are Docs who dont know what the *uck they are dealing with.

I'm on constant morphine now and recent radiotherapy on spine to try and reduce the pain. Only my skull and brain that doesnt have cancer in it so far so outlook uncertain despite a new treatment having a positive effect.

To BCN
The best place in US for clinical trials is the Sloane Kettering Cancer Centre in New York. If you can get into there youll have a fighting chance
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Giniw » Thu 05.04.2018, 12:50

Sorry to read this news, I wish you all the best Brit-Car-Nut! :-)
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Fredjohn » Thu 05.04.2018, 13:03

Sorry to hear this John, I wish you all the best.
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Brit-Car-Nut » Thu 05.04.2018, 13:33

DaveT wrote:Sorry to hear this news BCN

To BCN
The best place in US for clinical trials is the Sloane Kettering Cancer Centre in New York. If you can get into there youll have a fighting chance

Dave:

I have been a (well pampered) patient at the National Institutes of Health (NIH) for almost 8 years with my leukemia. (May 7, 2010)

I was "invited" to visit their Prostate group for testing and consult on April 17 and 18. I will fly up on the 16th and home late on the 18th.

I will know a lot more after they are done with their tests.

My current oncologist seems to have $$$$ in his eyes when he talks to me. I don't have insurance, so he was quoting costs between $150,000 and $300,000 which I am sure is their wishful costs before insurance and other healthcare negotiations knock them down to reality.

The symptoms happened suddenly, and PSAs, 2 weeks apart, have completely different results which is why I added the PSA-Free.

The sudden appearance of severe lower spine and pelvis pain is the terrifying symptom followed by the suggestion is it is probably now too late ...

When you have to pay for everything yourself, you can run up a nifty bill really quickly. The NIH invite was unexpected, but a tremendous relief for us.
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Brit-Car-Nut » Thu 05.04.2018, 13:35

Thanks for all of the messages from everyone.

There most likely will be a huge amount of new M100 replacement parts on the market soon...

I will know better next week what steps I will have to take.

For anyone considering a Shift Cable Kit, I have 2 sets assembled and one set in the test car. I hope to be able to continue offering them but probably won't order any more bare cables until things calm down.

I also have a warehouse full of used parts, so asking sooner is better than later if you are looking for anything to fix your own car.
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby tigerdog » Wed 18.04.2018, 01:43

Just saw this post, John. Truly a sucky turn of events. I hope the NIH folks are as on-the-ball as they have been for your ongoing ills. Please keep us posted!
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Re: Prostate CA: Sy grows a 'tache and KF grows half a beard

Postby Brit-Car-Nut » Wed 18.04.2018, 12:10

I have been here since Monday. One day of paperwork and two days of tests and scans. I will get the results later this afternoon and then more paperwork.

Early flight home tomorrow morning and then will have time to digest what they tell me.

Thanks for everyone's concerns.
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